But her case is caused by a rare genetic mutation, so medications that work for 90% of people with cystic fibrosis won’t help her. The same dynamic plays out in other genetic conditions.

But her case is caused by a rare genetic mutation, so medications that work for 90% of people with cystic fibrosis won't help her. The same dynamic plays out in other genetic conditions.

This photo provided by Emilys Entourage in April 2025 shows Emily Kramer-Golinkoff, who has cystic fibrosis caused by a rare genetic mutation, during a trip to Maine. (Emilys Entourage via AP ...

But her case is caused by a rare genetic mutation, so medications that work for 90% of people with cystic fibrosis won’t help her.